{"id":2167,"date":"2022-07-14T12:11:31","date_gmt":"2022-07-14T12:11:31","guid":{"rendered":"https:\/\/www.slovhep.sk\/verejnost\/clanok?uid=48589422519f431da92b26ea9902f7a0"},"modified":"2022-07-14T12:11:31","modified_gmt":"2022-07-14T12:11:31","slug":"verejnost-48589422519f431da92b26ea9902f7a0","status":"publish","type":"post","link":"https:\/\/slovhep.sk\/en\/verejnost-48589422519f431da92b26ea9902f7a0","title":{"rendered":"(Ne)dostupnos\u0165 lie\u010dby Wilsonovej choroby"},"content":{"rendered":"

Vá\u017eení poskytovatelia a pacienti,<\/p>\n

 <\/p>\n

na trhu momentálne nie je dostupná \u017eiadna forma lieku Metalcaptase na lie\u010dbu Wilsonovej choroby. Obidve registrované formy:<\/p>\n\n\n\n\n
29\/0362\/18-S<\/span><\/td>\n66753<\/span><\/td>\nMETALCAPTASE 300<\/a><\/span><\/td>\ntbl ent 50×300 mg (blis.PVC\/PVDC\/Al)<\/span><\/td>\nHEL-1<\/span><\/td>\n <\/td>\n<\/tr>\n
29\/0073\/98-S<\/span><\/td>\n66755<\/span><\/td>\nMETALCAPTASE 150<\/a><\/span><\/td>\ntbl ent 50×150 mg (blis.PVC\/PVDC\/Al)<\/span><\/td>\nHEL-1<\/span><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

 <\/p>\n

sú nedostupné. Doteraz dostupná nekategorizovaná forma lieku – 300mg Balenie malo nahlásenú nedostupnos\u0165 11.8.2022 Bli\u017ešie informácie na stránke ŠUKL https:\/\/portal.sukl.sk\/PreruseniePublic\/?act=PrerusenieOznList&mId=2<\/a><\/p>\n

Odporú\u010dame obráti\u0165 sa na Úrad na doh\u013ead nad zdravotnou starostlivs\u0165ou, vašu zdravotnú pois\u0165ov\u0148u a ministerstvo zdravotníctva SR a \u017eiada\u0165 usmernenie ako sa k lieku dosta\u0165.<\/p>\n

 <\/p>\n

Pod\u013ea sú\u010dasnej právnej úpravy nemô\u017ee lekár, ktorý pacienta lie\u010di s Wilsonovou chorobou – t.j. gastroenterológ, alebo hepatológ, pacientovi liek fyzicky zabezpe\u010di\u0165 (vyda\u0165, preda\u0165, sprostredkova\u0165 vzorku) a dokonca ani poveda\u0165 v ktorej lekárni je dostupný. Takýto postup je vyslovene protizákonný.<\/span> Lekár liek iba odporú\u010da, bu\u010f neformálne (ústne, písomne) alebo formálne formou lekárskeho predpisu. \u010ealší postup je v rukách iných poskytovate\u013eov zdravotnej starostlivosti – lekární, ktoré nemajú iba právo predáva\u0165 a vydáva\u0165 lieky, ale aj povinnos\u0165 lieky zabezpe\u010di\u0165. Dostupnos\u0165 lieku, ktorý je registrovaný štátnou inštitúciou, má kontrolova\u0165 a vymáha\u0165 štát prostredníctvom Ministerstva zdravotníctva.<\/p>\n

 <\/p>\n

Slovenská Hepatologická spolo\u010dnos\u0165 z vlastnej iniciatívy zabezpe\u010dila náhradu uvedeného lieku, ktorý však nie je registrovaný v SR. Liek má názov Kelatine a obsahuje rovnaku ú\u010dinnú látku ako Metalcaptase. 14.9.2022 bolo vydané povolenie MZ SR na pou\u017eitie tohto lieku v SR avšak toto povolenie nezakladá povinnos\u0165 ZP preplati\u0165 túto lie\u010dbu. <\/p>\n

 <\/p>\n

Opä\u0165 nad rámec povinností odbornej spolo\u010dnosti a ošetrujúcich lekárov sme \u017eiadali ZP o úhradu tohto lieku.<\/p>\n

Aktuálnu informáciu platnosti skupinového schválenia úhrady lieku ZP si mô\u017ete overi\u0165 na stránke zdravotných pois\u0165ovní:<\/p>\n

 <\/p>\n

VŠZP: https:\/\/www.vszp.sk\/poskytovatelia\/zdravotna-starostlivost\/zoznam-liekov\/zoznam-liekov-ktore-hradi-vszp-nad-ramec-kategorizacie\/<\/a><\/p>\n

Union: https:\/\/www.union.sk\/ziadosti-tlaciva\/uzp\/poskytovatel\/oznamy\/<\/a> -> Registrované lieky hradené nad rámec kategorizácie od 1. 8. 2023.xls<\/p>\n

Dôvera: https:\/\/www.dovera.sk\/lekar\/predchadzajuci-suhlas<\/a><\/p>\n

 <\/p>\n

<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Aktualizované informácie o dostupnosti Farmakologickej lie\u010dby Wilsonovej choroby.<\/p>\n","protected":false},"author":2,"featured_media":2345,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false,"footnotes":""},"categories":[6],"tags":[28],"class_list":["post-2167","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pre-verejnost","tag-ochorenia"],"yoast_head":"\n(Ne)dostupnos\u0165 lie\u010dby Wilsonovej choroby - artexe<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/slovhep.sk\/en\/verejnost-48589422519f431da92b26ea9902f7a0\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"(Ne)dostupnos\u0165 lie\u010dby Wilsonovej choroby - 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